top of page
Untitled design-7.png
Share your experiences with 
ASMD/Niemann Pick

Thank you for your interest in the virtual market research opportunity open to adults and caregivers of people living with Acid Sphingomyelinase Deficiency (ASMD) (also known as Niemann-Pick). The information you share will be used to help health care professionals better understand people's experiences when making treatment decisions for ASMD. 


If you or someone you care for has been diagnosed with ASMD, you may be eligible to participate in a series of virtual activities to answer questions about your experiences with ASMD.  If you qualify for and complete one or more of the open opportunities you will receive between $160 and $300 (depending on how many activities you complete) as a thank you for participating. The virtual activities that are part of the opportunities include:


  • 15-minute pre-interview survey

  • 60-minute virtual/online interview

  • Online diary exercise (over 1 to 2 weeks)

To see if you qualify please fill out the form below; a team member will email you within 24-48 hours with additional information about the opportunities.


To see if you qualify please fill out the form belowa team member will email you within 24-48 hours to schedule a time to discuss the study and determine if you qualify. If you have questions about the study please email Jenny Fowle (

*Please note, you must be a current resident of the US and 18 or older to qualify for and participate in this study. All information shared with Pinpoint will remain confidential. 

bottom of page