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Share your experiences living with Phenylketonuria (PKU)

We are looking for adults who are living with PKU (phenylketonuria) to participate in several activities  designed to learn more about their experiences. 

What will participants be asked to do?  

● Complete a 15-minute online survey 

● Participate in a 3-hour virtual group discussion 

● Participate in a 90-minute follow up virtual group discussion 



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Activities will take place over several weeks. Anyone who qualifies for and completes all the activities  will receive a check for up to $630 as a thank you for your participation. 


To see if you qualify please fill out the form belowa team member will email you within 24-48 hours to schedule a time to discuss. If you have questions about the study please email  Jenny Fowle at

*Please note, you must be a current resident of the US to qualify for and participate in this study. All information and responses will remain confidential.

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