The team at Pinpoint Patient Recruiting is searching for people who have been diagnosed with late-onset Pompe disease, and their care partners, to participate in a 40-minute survey. The information gathered will be used to help researchers better understand their experiences with Pompe and their opinions on treatments and care.

Those who qualify for and complete the 40-minute survey will receive a check for $90 as a thank you for participating.   

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*Please note, you must be a current resident of the US and 18 or older to qualify for and participate in this study. All information shared with Pinpoint will remain confidential.