Help us better understand
experiences with Pompe Disease.

We are seeking individuals with Pompe disease to participate in a market research study discussing your treatments and experiences. The feedback will be used to help future patients and their caregivers.  

If you qualify and complete the phone or online survey, you will receive an honorarium check for your time and participation.  All information and responses will remain confidential.


To see if you qualify or to get more information please contact Amanda Willis at

Or submit the form below and we will contact you shortly.

We are recruiting participants for this market research study on behalf of Fulcrum Research, an independent market research agency acting on behalf of a pharmaceutical company.

Pinpoint Patient Recruiting 


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Pinpoint Patient Recruiting is a U.S. based company that only recruits individuals within the U.S. We make no attempts to recruit individuals outside of the U.S. for any market research studies or clinical trials.