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Are you living with Pompe disease?
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The team at Pinpoint Patient Recruiting is searching for people who have been diagnosed with

Pompe disease to participate in a 45-minute virtual interviewThe information gathered will be used to help researchers better understand their experiences with Pompe and their opinions on treatments and care.

Those who qualify for and complete the 45-minute online interview will receive a check for $100 as a thank you for participating. 

*Please note, you must be a current resident of the US and 18 or older to qualify for and participate in this study. All information shared with Pinpoint will remain confidential. 


Please make sure to answer Pompe Warrior Foundation or PWF!

You will be asked to join our community and answer a few quick questions to help match you to opportunities you may qualify for. You can opt out at any time by emailing

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