We are working with Adelphi Values to better understand peoples' experiences with Lymphatic Malformations (LM). Researchers are conducting 90-minute virtual interviews to discuss the signs, symptoms, and impacts of these conditions, and to obtain your feedback on health-related questionnaires.

 

Who may qualify to participate?

• Adults (ages 18+) who have been diagnosed with a lymphatic malformation

• Adolescents (ages 12 - 17) who have been diagnosed with a lymphatic malformation (parents of adolescent participants will be asked to provide consent for their child to participate and are welcome to be present during the interview)

• All participants must live in the US and must be able to provide confirmation of diagnosis

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Eligible participants who complete the study will receive $250 as a thank you.

 

This is NOT a medication-related study. No medication will be administered. Inclusion in the interviews will not replace or affect any care or assistance you (or your child) receive or may receive in the future.

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All information shared with Pinpoint will remain confidential.