
Are you living with thalassemia?

The team at Pinpoint Patient Recruiting is searching for people diagnosed with non-transfusion dependent thalassemia (NTDT) to take part in a 90-minute virtual interview. Participants ages 13-65 years old will be asked to share about how living with this condition impacts daily life and to provide feedback on questionnaires related to thalassemia. Those who qualify and complete the study, will receive a check for $230 as a thank you for participating.
​​
Participants will be required to provide confirmation of their thalassemia diagnosis by providing a screenshot of their medical records or asking their doctor to complete a form.
​
Parents of participants (ages 13 - 17) will be asked to provide consent for their child to participate and are welcome to be present during the interview.
​
*Please note, you must be a current resident of the US to qualify for and participate in this study. All information shared with Pinpoint will remain confidential.
Interested?
You will be asked to join our community and answer a few quick questions to help match you to opportunities you may qualify for. You can opt out at any time by emailing optout@pinpointpatientcommunity.com.