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Share your experiences with 
ASMD/Niemann Pick

Thank you for your interest in the virtual market research opportunity open to people living with Acid Sphingomyelinase Deficiency (ASMD) (also known as Niemann-Pick). The information you share will be used to help health care professionals better understand people's experiences when making treatment decisions for ASMD. 


If you or someone you care for has been diagnosed with ASMD, you may be eligible to participate in a virtual interview to answer questions about your experiences.  If you qualify for and complete the interview you will receive $125 as a thank you for participating.

To see if you qualify please fill out the form belowa team member will email you within 24-48 hours to schedule a time to discuss the study and determine if you qualify. If you have questions about the study please email Julie Knell  (

*Please note, you must be a current resident of the US and 18 or older to qualify for and participate in this study. All information shared with Pinpoint will remain confidential. 

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