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Help Us Better
Understand ASMD

Study is open to people diagnosed with ASMD and caregivers.

Fulcrum Research Group, an independent market research firm, is working with Pinpoint Patient Recruiting to connect to people with Niemann-Pick Disease and their caregivers to better understand patient experiences. 

If you or a loved one has been diagnosed with Acid Sphingomyelinase Deficiency (ASMD) / Niemann-Pick Type B or Intermediate Type A/B, you may qualify to participate in a 75-minute telephone interview. The research will be confidential, and insights will be used for research purposes only.  If you qualify and complete the interview, you will receive $155. Only individuals over the age of 18 who live in the US may participate.

The timeframe for this research study is limited so please respond soon if you are interested in participating. 

To see if you qualify or to get more information please fill out this form and we will contact you for a brief screening call shortly.


You may also contact the project manager for the study at asmd@pinpointpatientrecruiting.com.