Do you or your child have sickle cell disease?
The team at Pinpoint Patient Recruiting is searching for adolescents and adults who are living with sickle cell disease (SCD) to participate in a 75-minute online interview. Researchers want to hear your personal experiences and insights in order to improve treatment and care.
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During the online interview(s), participants will be asked to share how SCD affects daily life and provide feedback on commonly used health questionnaires related to SCD. Anyone who qualifies for and completes the interview will receive a check for $215 as a thank you.. All information and responses will be kept confidential.
Who may be eligible to participate?
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Adults (ages 18+) who have been diagnosed with sickle cell disease
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Adolescents (ages 12 - 17) who have been diagnosed with sickle cell disease (parents of adolescent participants will be asked to provide consent for their child to participate and are welcome to be present during the interview).
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All participants must live in the US and must be able to provide confirmation of their SCD diagnosis
You will be asked to join our community and answer a few quick questions to help match you to opportunities you may qualify for. You can opt out at any time by emailing optout@pinpointpatientcommunity.com.