Does your child have myotonic dystrophy?
Thank you for your interest in the myotonic dystrophy online group discussion. You may be eligible to participate if you have a child (under the age of 18) who has been diagnosed with myotonic dystrophy (DM). Researchers want to learn more about your child's journey with DM diagnosis and treatments, the impact this condition has on daily life, and your opinions on care.
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The 90-minute focus groups will include ~5 other parents of children who have been diagnosed with DM. The discussion will be scheduled for late July/early August. ​Those who qualify for and complete the conversation will receive a check for $200 as a thank you.
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*Please note, you must be a current resident of the US and 18 or older to qualify for and participate in a study. All information shared with Pinpoint will remain confidential.
You will be asked to join our community and answer a few quick questions to help match you to opportunities you may qualify for. You can opt out at any time by emailing optout@pinpointpatientcommunity.com.