We are searching for care partners of individuals who have been diagnosed with myotonic dystrophy (DM1) to participate in a 60-minute online interview about your experiences.

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If you are a care partner to someone aged 16 or older who has been diagnosed with myotonic dystrophy, you may be eligible to participate. Researchers want to hear your perspectives on caring for someone living with DM1 and obtain your feedback on questionnaires used in clinical settings. Information you share will be kept confidential and your insights may support the evaluation of treatments.

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If you qualify and complete the interview, you will receive a check for $150 as a thank you for your time and insights.

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*Please note, you must be a current resident of the US and 18 or older to qualify for and participate in a study. All information shared with Pinpoint will remain confidential.