We are searching for people to participate in a 90-minute online discussion board and a 60-minute virtual interview about their experiences with sickle cell disease. Those who qualify and complete the study activities will receive a check for $375 as a thank you for their time.

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You may be eligible to participate if:

• You have been diagnosed with sickle cell disease and are 18 or older or

• You are a care partner for a loved one (ages 16-30) who has sickle cell disease​

 

The feedback shared in the interviews will be used to help researchers better understand the daily impact SCD has on people's lives and how they make decisions about treatment and care. 

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*Please note, you must be a current resident of the US and 18 or older to qualify for and participate in this study. All information shared with Pinpoint will remain confidential.